We are a team of dedicated and committed healthcare professionals providing 24 hour access to care for patients in the region with bleeding disorders.  The Consultant Haematologists are Dr David Allsup (centre Director) and Dr Jireh Ann-Batac who care for adults and Dr Simone Green who cares for children with bleeding disorders. The clinical nursing team consists of two part time clinical nurse specialists (CNS); CNS Phillipa Barnes and CNS Katie Gladstone, one full time Senior Staff Nurse Jeanette Fenwick and one part time Senior Staff Nurse Emilie Newman. We also have a specialist physiotherapist Joanne Minshall and a data manager Sam Young. A joint haematology and obstetric clinic is held monthly by Dr Ann-Batac (Haematology Consultant), Dr Yeap (Obstetrician) and a haemostasis nurse caring for pregnant patients with a variety of bleeding disorders and managing their care during pregnancy, delivery and post-delivery.

The haemophilia team regularly participates in research studies related to a variety of different bleeding disorders and all team members are trained appropriately for this. The whole team regularly attends relevant conferences and training course to ensure our clinical knowledge is up to date, effective and safe.  We have robust systems in place for assisting us in providing high quality, patient focused care, including monthly multidisciplinary meetings and Trust wide guidelines for care of patients with bleeding disorders.

The Hull haemostasis CCC service cares for both adults and children with various bleeding disorders. We provide patients with a wide range of inpatient, outpatient and community outreach care including responding to emergency episodes. The nursing team are heavily involved in delivering patient care and work between sites at Hull Royal Infirmary and Castle Hill Hospital.  The nursing team also provide nurse led clinics, hold non-medical prescribing qualifications, support and manage patient surgery within the Trust, provide training to other staff within the trust and in the community setting.  The nursing team carry out home visits for training parents/carers and attend schools to provide educational talks for young people with bleeding disorders.  Patients on regular treatment regimens have access to home delivery which is organised through the nursing team.  Paediatric patients are seen at Hull Royal Infirmary by the same nursing team that cover adult services. This therefore helps ease the transitioning period for children when moving over to adult services at Castle Hill Hospital.  The team also cares for adults with Immune Thrombocytopenia Pupura (ITP) at Castle Hill Hospital.

Patients have access to genetic counselling, specialist physiotherapy and laboratory testing with strong links with other specialist services within HUTH.  Patients are given a haemorrhagic status card which contains the appropriate telephone numbers needed to obtain advice, support and specialist information. They have access to this advice 24 hours a day, 7 days a week.

Severe haemophiliacs (adults and children) have access to a dedicated clinic ensuring all their needs are met. The haemophilia physiotherapist will be present at these clinics.

The adult haemostasis clinics are every Friday morning at Castle Hill Hospital.  These are a combination of new patients, severe patients and follow up appointments, they will be either face to face or telephone.

Dr Green’s new patient paediatric clinics are on a Tuesday morning once a month with Dr Lesley Clarkson – Consultant paediatrician.  There is also a follow up clinic held once a month on a Wednesday afternoon.  Both clinics are a combination of face to face and telephone appointments.

Nurse led service: Daily clinic Monday to Friday 8 am – 6pm.  Pre-planned appointments (follow ups) and acute assessments.  Patients with acute problems are encouraged to call the contact numbers below for advice first so your care can be directed to the most appropriate clinical area.

Nurse led Telephone Clinics: Once a month Friday pm (3^rd Friday pm) Paediatrics and once a month Monday pm (2^nd Monday pm).

Please note: telephone appointment times are a guide you not be called at that exact time but they will ring you that morning or afternoon (depending on if it is a morning or afternoon clinic session).

Should you require an interpreter for your appointment please make sure we are aware by contacting the telephone number on your clinic letter or the number below and this can be arranged. We can also access remote interpreter services on the day of your appointment (video or telephone).

Referrals to physiotherapy are made through the haemostasis nursing team on the number below.   For general physiotherapy enquiries you can call the haemophilia nurses or contact the Therapies centre at Castle Hill Hospital on 01482626712.  Both can direct your enquiry to the correct physiotherapist.

Dr David Allsup
Consultant Haematologist and Centre Director

Phillipa Woods (RSCN/RGN) / Katie Gladstone (RGN) 
Clinical Nurse Specialists / Non-medical independent prescribers

Emilie Newman (RGN) / Jeanette Fenwick (RGN)
Senior Staff Nurses

Guideline 196
Guidelines for the Emergency Treatment and Management of Patients with Haemophilia and Bleeding Disorders

This document includes definitions of Haemophilia A, Haemophilia B and Von Willebrands disease. All of which are inherited bleeding disorders. The treatment dose equations required to treat specific injury’s including muscle/joint bleeds, trauma and surgery is included along with a list of factor products required for each condition and where to find the products with the Hull University Teaching Hospital trust.  This includes the administration of Desmopressin (Octim) and emergency first aid treatment of patients with a bleeding disorder.

Draft Report for Quality Assurance Group

At the end of 2018 the Hull Haemophilia Centre was peer reviewed against other haemophilia and contemporary care centres across the country by health professionals working within haemostasis. Attached is the report produced from this review, this includes areas in which the Hull Haemophilia centre excel and areas which can develop to ensure patients receive the best possible care.

• APS Support UK
• Funny Blood
• Genetic and Genomic Testing
• The Haemophilia Society
• The ITP Support Association
• Thrombosis UK
• UKHCDO
• World Federation of Haemophilia

The Haemostasis Nursing Team are available Monday to Friday from 8.00am to 6.00pm.

• 01482 461403 (Nurses’ Office)
• 01482 461296 (Secretary)

For advice on bleeding disorders in a non-emergency situation please e-mail the following address:
hyp-tr.bleedingdisordersadvice@nhs.net
Please note this e-mail is not monitored 24 hours a day.

For urgent advice please contact the haemophilia nurses during office hours as seen above.
Or if you need advice out of office hours you can call the haematologist on-call  via the switch board ( 01482 875875 ) or attend your local accident and emergency centre.