Macmillan Breast Care Nurse Specialist Team For Primary Breast Cancer and DCIS

Patient Leaflets Team

  • Reference Number: HEY-157/2022
  • Departments: Breast Care, Oncology (Cancer Services)
  • Last Updated: 1 May 2022

This leaflet has been produced to give you general information about the Macmillan Breast Care Nursing Team at Hull University Teaching Hospitals NHS Trust who are based in the Breast Care Unit at Castle Hill Hospital.

The team work closely within local and national guidelines to provide ongoing practical and emotional/ psychological support for those diagnosed with Breast Cancer or DCIS (Ductal Carcinoma In-Situ) and their significant others; throughout the treatment pathway and follow up.

The team is also available to give advice and support to individuals with benign breast disease.

What is the role of the Macmillan Breast Care Nursing Team?

The Hull University Teaching Hospital Macmillan Breast Care Nursing Team consists of Specialist Nurses and Cancer Care Co-ordinators.

The Macmillan Breast Care Nurse Team will look after you throughout your treatment pathway and follow up and will liaise closely with the multi-disciplinary team involved with your care. You will be allocated a key worker from the team.

The Macmillan Cancer Care coordinators’ have had additional training to help and support patients and their significant others who are being investigated and diagnosed with Breast Cancer/ DCIS, those undergoing treatment and those in follow up programmes. They work very closely with the nursing team to help them to care and support you.

The service also aims to give you the skills, knowledge and confidence to manage your health through advice and giving information to support you. We will also let you know about other services you can access for additional needs.

How can we help you?

In order to help you fully understand your diagnosis, treatment plan and follow up so that you receive an appropriate level of support, we have an open access telephone triage number where contact with a member of the Macmillan Breast Care Nursing Team can be arranged for you. This contact is usually by telephone.

The Macmillan Breast Care Nurse (Key Worker) you met today was:

………………………………………………………………………………

We work as a team and are all available to support you throughout your treatment and follow up.

When you attend for an appointment with your Breast Specialist doctor, there is usually a Macmillan Breast Care Nurse available should you wish to see one. You can also contact her at any point, even after all your treatment has been completed, should you wish to discuss anything that you feel is important to you.

How can I contact the team?

The Hull University Teaching Hospital Macmillan Breast Care Nursing Team work Monday to Friday and messages can be left on the answer phone and will be dealt with between the hours of:

Monday to Thursday 09:00-17:00pm

Friday 09:00-12:00pm

The team will endeavour to return your call within 48 hours (unless messages are left outside of these hours, over the weekend or on Bank Holidays when calls will be returned on the following working day).

The Breast Cancer Care Co-ordinators will be your first point of contact on (01482) 622013.

They will triage the messages to ensure you are able to get the right information, advice, care and support you need to help you with your concerns, queries or questions from the right team member or service.

Please note that this is not an Emergency number.

Useful addresses and telephone numbers

 Breast Cancer Now

https://breastcancernow.org/

General Enquiries and Supporter Care: 0333 20 70 300

Support Services: 0345 077 1893

General Enquiries and Supporter Care: hello@breastcancernow.org

Support Services: services@breastcancernow.org

Ibex House
42-47 Minories
London
EC3N 1DY

Macmillan Cancer Support

Helpline – 0808 808 00 00
www.macmillan.org.uk

89 Albert Embankment
Lambeth
London
SE1 7UQ

About Macmillan Cancer Support

Macmillan Cancer Support works with a wide range of agencies and health professionals to provide better services for patients with cancer from the point of diagnosis. Macmillan Cancer Support works in partnership with the National Health Service to improve the provision of mainstream healthcare for people with cancer and their families. Macmillan Cancer Support funds nurses, doctors and buildings for cancer care and also provides patient grants to people who have cancer or who are experiencing the effects of cancer and are in financial need.

General Advice and Consent

Most of your questions should have been answered by this leaflet, but remember that this is only a starting point for discussion with the healthcare team.

Consent to treatment

Before any doctor, nurse or therapist examines or treats you, they must seek your consent or permission. In order to make a decision, you need to have information from health professionals about the treatment or investigation which is being offered to you. You should always ask them more questions if you do not understand or if you want more information.

The information you receive should be about your condition, the alternatives available to you, and whether it carries risks as well as the benefits. What is important is that your consent is genuine or valid. That means:

  • you must be able to give your consent
  • you must be given enough information to enable you to make a decision
  • you must be acting under your own free will and not under the strong influence of another person

Information about you

We collect and use your information to provide you with care and treatment. As part of your care, information about you will be shared between members of a healthcare team, some of whom you may not meet. Your information may also be used to help train staff, to check the quality of our care, to manage and plan the health service, and to help with research. Wherever possible we use anonymous data.

We may pass on relevant information to other health organisations that provide you with care. All information is treated as strictly confidential and is not given to anyone who does not need it. If you have any concerns please ask your doctor, or the person caring for you.

Under the General Data Protection Regulation and the Data Protection Act 2018 we are responsible for maintaining the confidentiality of any information we hold about you. For further information visit the following page: Confidential Information about You.

If you or your carer needs information about your health and wellbeing and about your care and treatment in a different format, such as large print, braille or audio, due to disability, impairment or sensory loss, please advise a member of staff and this can be arranged.

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