Discharge from the Breast Cancer Follow-up Clinic – Information for Patients

  • Reference Number: HEY-235/2018
  • Departments: Breast Services

Introduction

This leaflet has been produced to give you general information about your discharge from the Breast Cancer Follow Up Clinic.   Most of your questions should be answered by this leaflet.   It is not meant to replace the discussion between you and your doctor but may act as a starting point for discussion.   If after reading it you have any concerns or require further explanation, please discuss this with a member of the Breast Care team caring for you.

You have now been discharged from the Breast Cancer Follow-up Clinic

This leaflet is intended to give you advice about further follow up for mammograms, which symptoms you may need to act upon and useful contact details.

Will I continue to have mammograms?

If you are under 50 years of age, we will continue to invite you for yearly mammograms (Breast X-rays) at the Breast Care Unit. A letter will be sent to you with the results from these mammograms.

If you are between 50 and 73 years of age, you will be called for three yearly mammograms by the Breast Screening Service.

If you are over 73 years of age, you may self-refer to the Breast Screening Unit if you wish to have further mammograms but you will not be called automatically.

What symptoms should I look for?

If you have any symptoms that worry you or new issues arising, you should contact your own GP who can refer you back to the Breast Clinic where you will be seen within two weeks. If you experience any of the symptoms listed below, you must act upon them by discussing with your GP:

  • New lumps in the breast or armpit.
  • New thickening in the breast scar.
  • An indrawn nipple.
  • Bleeding or a rash of the nipple.
  • A new pain over a bone, which keeps you awake at night and is not relieved by pain relief medication, especially in the back and ribs.
  • Breathlessness or difficulty breathing.
  • Persistent cough.
  • Severe or prolonged headache, double vision or limb weakness.
  • Weight loss not explained by dieting.
  • Abdominal pain, swelling or jaundice (yellow colouring of the skin).
  • Persistent nausea.

Remember there are many causes for these symptoms and they are not necessarily associated with breast cancer.

Should you require further advice on the issues contained in this leaflet, please do not hesitate to contact the Breast Care Nurses on Tel no: (01482) 622013.

Useful addresses and telephone numbers:

Breast Screening Office

(01482) 622300 – Monday – Friday 0900-1600

Ongoing Support and Information for Moving Forward

Hull and East Yorkshire Hospitals NHS Trust  – (01482) 461091

Macmillan Cancer Support

89 Albert Embankment
Lambeth
London
SE1 7UQ
Freephone – 020 7840 7840
Helpline – 0808 808 00 00
www.macmillan.org.uk

Breast Cancer Care

Chester House
1-3 Brixton Road
London
SW9 6DE
Main switchboard: 0345 092 0800
Helpline – 0808 800 6000
www.breastcancercare.org.uk

Breast Cancer Now

Ibex House
5th Floor 1 Bex House
42-47 Minories
London
EC3N 1DY
Phone: 0333 207 0300

 

General Advice and Consent

Most of your questions should have been answered by this leaflet, but remember that this is only a starting point for discussion with the healthcare team.

Consent to treatment

Before any doctor, nurse or therapist examines or treats you, they must seek your consent or permission. In order to make a decision, you need to have information from health professionals about the treatment or investigation which is being offered to you. You should always ask them more questions if you do not understand or if you want more information.

The information you receive should be about your condition, the alternatives available to you, and whether it carries risks as well as the benefits. What is important is that your consent is genuine or valid. That means:

  • you must be able to give your consent
  • you must be given enough information to enable you to make a decision
  • you must be acting under your own free will and not under the strong influence of another person

Information about you

We collect and use your information to provide you with care and treatment. As part of your care, information about you will be shared between members of a healthcare team, some of whom you may not meet. Your information may also be used to help train staff, to check the quality of our care, to manage and plan the health service, and to help with research. Wherever possible we use anonymous data.

We may pass on relevant information to other health organisations that provide you with care. All information is treated as strictly confidential and is not given to anyone who does not need it. If you have any concerns please ask your doctor, or the person caring for you.

Under the General Data Protection Regulation and the Data Protection Act 2018 we are responsible for maintaining the confidentiality of any information we hold about you. For further information visit the following page: Confidential Information about You.

If you or your carer needs information about your health and wellbeing and about your care and treatment in a different format, such as large print, braille or audio, due to disability, impairment or sensory loss, please advise a member of staff and this can be arranged.