• Reference Number: HEY972/2026
• Departments: Nutrition Support
• Last Updated: 30 April 2026

Who are we?

We are a friendly group of patients and relatives who came together in October 2013. We have artificial Nutrition either Parenteral Nutrition or Intravenous fluids at home. As a group we listen, provide support and practical advice when needed.

What to expect?

The group is run by the Nurse Specialists for the Intestinal Failure service on the North Bank in Hull. The atmosphere is relaxing and friendly. You are welcome to bring members of your family with you. They may also find it helpful to be involved.

Group aims

• Meet other patients and relatives
• Helpful “Tips & advice”
• Good opportunity to talk through any concerns privately or in small groups
• Guest speakers are asked to attend.
• Listen to presentations chosen by us the patients
• Join in with discussions
• Updates in practice around central line care
• Share holiday experiences and explore coping strategies and travel tips.
• Make suggestions and feedback about the service that we provide for you.

Is it for me?

Leaving hospital can be very daunting. You can sometimes feel isolated. Many patients find it is helpful to meet with other patients. Some people want to be involved as much as possible about their condition, others prefer not to. You are welcome to attend any of our groups twice a year. For more information speak with your Nurse Specialists.

When and Where?

We hold two groups each year based at Castle Hill Hospital in Hull.  Invitations and a programme of events are sent out the month previous.

Come and have a drink, light snack and a chat. All are welcome.

Useful addresses and contact numbers

PINNT are a national charity which is run by patients with lived experiences that provide you with tips.

PINNT, PO Box 3126, Christchurch, Dorset, BH23 2XS

Email: info@pinnt.com Website: www.pinnt.com

Should you require further advice on the issues contained in this leaflet, please do not hesitate to contact the Nurse Specialists on Tel; 07827 937025.

General Advice and Consent

Most of your questions should have been answered by this leaflet, but remember that this is only a starting point for discussion with the healthcare team.

Consent to treatment

Before any doctor, nurse or therapist examines or treats you, they must seek your consent or permission. In order to make a decision, you need to have information from health professionals about the treatment or investigation which is being offered to you. You should always ask them more questions if you do not understand or if you want more information.

The information you receive should be about your condition, the alternatives available to you, and whether it carries risks as well as the benefits. What is important is that your consent is genuine or valid. That means:

• you must be able to give your consent
• you must be given enough information to enable you to make a decision
• you must be acting under your own free will and not under the strong influence of another person

Information about you

We collect and use your information to provide you with care and treatment. As part of your care, information about you will be shared between members of a healthcare team, some of whom you may not meet. Your information may also be used to help train staff, to check the quality of our care, to manage and plan the health service, and to help with research. Wherever possible we use anonymous data.

We may pass on relevant information to other health organisations that provide you with care. All information is treated as strictly confidential and is not given to anyone who does not need it. If you have any concerns please ask your doctor, or the person caring for you.

Under the General Data Protection Regulation and the Data Protection Act 2018 we are responsible for maintaining the confidentiality of any information we hold about you. For further information visit the following page: Confidential Information about You.

If you or your carer needs information about your health and wellbeing and about your care and treatment in a different format, such as large print, braille or audio, due to disability, impairment or sensory loss, please advise a member of staff and this can be arranged.