- Reference Number: HEY972/2026
- Departments: Nutrition Support
- Last Updated: 30 April 2026
Who are we?
We are a friendly group of patients and relatives who came together in October 2013. We have artificial Nutrition either Parenteral Nutrition or Intravenous fluids at home. As a group we listen, provide support and practical advice when needed.
What to expect?
The group is run by the Nurse Specialists for the Intestinal Failure service on the North Bank in Hull. The atmosphere is relaxing and friendly. You are welcome to bring members of your family with you. They may also find it helpful to be involved.
Group aims
- Meet other patients and relatives
- Helpful “Tips & advice”
- Good opportunity to talk through any concerns privately or in small groups
- Guest speakers are asked to attend.
- Listen to presentations chosen by us the patients
- Join in with discussions
- Updates in practice around central line care
- Share holiday experiences and explore coping strategies and travel tips.
- Make suggestions and feedback about the service that we provide for you.
Is it for me?
Leaving hospital can be very daunting. You can sometimes feel isolated. Many patients find it is helpful to meet with other patients. Some people want to be involved as much as possible about their condition, others prefer not to. You are welcome to attend any of our groups twice a year. For more information speak with your Nurse Specialists.
When and Where?
We hold two groups each year based at Castle Hill Hospital in Hull. Invitations and a programme of events are sent out the month previous.
Come and have a drink, light snack and a chat. All are welcome.
Useful addresses and contact numbers
PINNT are a national charity which is run by patients with lived experiences that provide you with tips.
PINNT, PO Box 3126, Christchurch, Dorset, BH23 2XS
Email: info@pinnt.com Website: www.pinnt.com
Should you require further advice on the issues contained in this leaflet, please do not hesitate to contact the Nurse Specialists on Tel; 07827 937025.
