- Reference Number: HEY-502/2023
- Departments: Haematology
- Last Updated: 1 December 2023
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This leaflet has been produced to give you advice about a condition known as lymphoedema. It can be used in conjunction with the information you will already have been given by your Lymphoedema Nurse Specialist. The leaflet will help you manage your lymphoedema following your initial assessment.
Most of your questions should have been answered at your initial assessment; if, however, after reading this leaflet, you have any concerns or require further explanation please contact your Lymphoedema Nurse Specialist.
What is lymphoedema?
Lymphoedema is a collection of lymphatic fluid (clear fluid that circulates around the body tissues) that builds up in the tissues below the skin and causes swelling to the affected area. It will occur when the drainage routes of lymphatic fluid become blocked or damaged due to cancer or its treatments e.g. surgery, radiotherapy, tumour and trauma. Although lymphoedema cannot be cured, your individual management programme, as discussed and agreed with your Lymphoedema Nurse Specialist, can help to control and reduce your lymphoedema.
How to manage your lymphoedema
Lymphoedema of the face, neck and head is usually managed with Manual/Medical Lymphatic Drainage (MLD) and Simple Lymphatic Drainage (SLD). Occasionally low pressure compression garments may be used.
Management of your lymphoedema will include the following:
- Skin Care
- Simple Lymphatic Drainage (SLD)/Self massage
- Manual/Medical Lymphatic Drainage (MLD)
Skin care for patients with head and neck swelling:
The following is a list of things that will help you:
- Inspect your skin daily, looking for signs of broken areas, redness and swelling.
- Treat small cuts and grazes promptly by cleaning well and applying antiseptic. If the area becomes hot, red and more swollen, notify your GP as soon as possible.
- Protect your skin over the face and neck from sunburn.
- Use an electric razor when shaving.
- Do not wear restrictive clothing around the neck area.
Patients who have had radiotherapy may develop redness of the skin because of their treatment. By 6 – 8 weeks following your radiotherapy there should be skin healing/repair. If your skin is still red and hot you should contact your Head/Neck Nurse Specialist for advice on telephone number (01482) 461085.
People with lymphoedema have an increased risk of developing an infection due to their impaired lymphatic system. One of the most common infections is called cellulitis, which can affect the area of your swelling.
It is important to know the signs of infection and to get it treated as soon as possible.
The signs of cellulitis are:
- Inflammation of the skin
- Warmth (of the skin)
- Redness of the skin (erythema)
- Flu-like symptoms such as high temperature, headaches
You will need to see your GP immediately to assess if antibiotics are required. Please inform your Lymphoedema Nurse Specialist after you have seen your GP.
Repeated attacks of cellulitis will cause further damage to the lymphatics and may result in an increase of swelling. It is important to try to reduce the risk of cellulitis by taking very good care of your skin. You are recommended to:
- Avoid breaks in the skin
- Use a non-perfumed moisturising cream to keep your skin soft, supple and in good condition
Exercises for patients with face and neck swelling
The special movements you carry out will have the following effects. Exercises will help to drain the fluid out of the swollen area. The muscles squeeze and relax as they work, which in turn helps to pump the fluid away.
It is recommended that you also:
- AVOID over-exertion, do not strain and do not be over-vigorous
- AVOID lifting, carrying, pushing, or pulling heavy weights
- DO all exercises slowly
- DO all exercises twice daily
The exercises can be done either sitting down or standing. If the exercises cause you pain or dizziness, discontinue until you have contacted your Lymphoedema Nurse Specialist.
If you have cellulitis you should rest until your infection has resolved.
Exercises can be carried out either sitting or standing and each exercise should be repeated 5 times, as often as you like. Please ensure you take a short break between each repetition.
- Standing or sitting in front of a mirror, carry out exaggerated vowel sounds (A, E, I, O, U)
2. Shrug shoulders up and down. Repeat 5 times.
3. Rotate shoulders in circles forwards and backwards.
4. Facing forward, gently turn head to look over left shoulder, return to the centre before turning to look over right shoulder. Repeat 5 times.
5. Look downwards placing chin on chest and then gently stretch chin upwards.
6. When in bed sleep on at least 2 pillows.
Definition of MLD/SLD
Manual/Medical Lymphatic Drainage (MLD) is performed by your Lymphoedema Nurse Specialist. You may be offered a course of treatment which will involve attending the Lymphoedema Clinic. A course of treatment may last for 2 – 3 weeks.
It involves treating unaffected lymph nodes using very gentle pressure and slow, rhythmical movements. This helps to soften tissues and reduce swelling. MLD cannot be used if you have an infection (cellulitis) over the swollen area or if you have certain other conditions e.g. heart problems.
Simple Lymphatic Drainage (SLD)
Simple Lymphatic Drainage (SLD) is a gentle, self massage carried out daily at home and is used with a combination of breathing exercises.
Your Lymphoedema Nurse Specialist will demonstrate this technique to you.
It is carried out daily, using very gentle stretches of the skin in a particular direction.
The Lymphoedema Support Network (LSN) is a patient led website and can be used as an additional source of information www.lymphoedema.org/
Should you require further advice on the issues contained in this leaflet, please do not hesitate to contact:
The Lymphoedema Team
The Queen’s Centre for Oncology/Haematology
Castle Hill Hospital, Castle Road
Cottingham, HU16 5JQ
Telephone: (01482) 461110/ 461084