Lymphoma Patient Initiated Follow Up

Nikki Harrison

  • Reference Number: HEY1541/2025
  • Departments: Oncology (Cancer Services)
  • Last Updated: 31 March 2025
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Introduction

This leaflet has been produced to give you general information. Most of your questions should be answered by this leaflet. It is not intended to replace the discussion between you and the healthcare team but may act as a starting point for discussion. If after reading it you have any concerns or require further explanation, please discuss this with a member of the healthcare team.

What is a Patient-Initiated Follow-Up (PIFU) pathway?

A patient-initiated follow-up (PIFU) means that we will not routinely book you a follow up appointment, instead we are putting you in control of making your own appointments at a time when you need them most, within a given timeframe.

How does PIFU work?

You will have been given this leaflet because your healthcare professional is happy that you do not need to see them again unless you have a problem. If you do have any problems, you can contact the Living With & Beyond Cancer Team on the given telephone number and they will arrange an appointment, either by telephone, or face-to-face if it is needed.

When should I call for a PIFU?

You can call to make an appointment if you

  • Have unexplained weight loss
  • Drenching night sweats
  • Have noticed a new lymph node/ lump
  • New symptoms that relate to your original lymphoma

When should I not use PIFU?

  • If your concern is related to a different illness/condition
  • If the specified time period has lapsed, please contact your GP
  • If you need urgent medical advice, you should contact your GP or NHS111

What if I don’t need a PIFU follow-up appointment?

You do not have to arrange an appointment if you feel it is not required.  If you don’t contact us to book an appointment within the specified timeframe, the PIFU will expire, and you will be discharged back to the care of your GP.  We will not contact you to book a PIFU appointment – it must be initiated by you.

Should you require further advice on the issues contained in this leaflet, please do not hesitate to contact the Living With & Beyond Cancer Team on tel: 01482-461091

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