I Am Research
Each year over 3,500 patients take part in clinical research at your local hospitals and we aim for all of our patients to be offered the opportunity to participate.
In many cases doctors will tell patients about research but we also need patients to ask about it and to keep research at the top of the NHS agenda.
In a recent consumer poll, only 21% of patients and the public said that they would feel confident asking their doctor about research opportunities.
So, please ask the person treating you if there is a research study that might be right for you. Remember you don’t necessarily have to be a patient to take part in a research study — you may just need to give a blood sample or fill out a simple questionnaire.
UK Clinical Trials Gateway
The UK Clinical Trials Gateway (UKCTG) brings together information about current health research trials from a variety of sources which can then be searched to find out more about the trials that are taking place. The Gateway provides easy to understand information about clinical research trials running in the UK, and gives you and others access to a large range of information about these trials. It is designed to enable you and your clinician to locate and contact trials of interest to you.
The information is being taken from a variety of national registers that are publicly available. This means that it can include trials that may be run from other countries but which have part of the study taking place in the UK.
The UK Clinical Trials Gateway (UKCTG) has been established by the National Institute for Health Research (NIHR) on behalf of all the UK Health Departments and with the assistance of a number of clinical research charities, research professionals and patient representatives. It fulfils the government’s commitment in the Plan for Growth, published by HM Treasury in March 2011, that the government will open up information about clinical trials to enable the public to get involved and so that patients can find out about clinical trials that may be relevant to their condition.
People in Research
People in Research is a national database allowing you to find out more about ways to get involved in research.
INVOLVE is a national advisory group that supports greater public involvement in NHS, public health and social care research. They offer a large range of information and supporting documents that explain patient and public involvement in detail.
National Institute for Health Research (NIHR)
The National Institute for Health Research (NIHR) is a UK government body that coordinates and funds research for the National Health Service (England). The NIHR is committed to improving the health and wealth of the nation through research and involving patients in all aspects of its work.
The National Institute for Health Research also provides information on how patients can take part in research.
For further information:
CentreWatch is a Clinical Trials Listings Service that assists patients in finding and volunteering for clinical trials. Today, CentreWatch has the largest online database of industry-sponsored global clinical trials actively seeking volunteers.
Clinical Research Network
The Clinical Research Network comprises of 15 Local Clinical Research Networks that cover the length and breadth of England. Each local Clinical Research Network delivers research across 30 clinical specialties.
Visit the Clinical Research Network website to find out more on you can take part in Clinical Research. The site also has useful resources and further information on the following areas:
- NIHR “Your records save lives” information document.
- INVOLVE Patient Information Pack which includes a useful list of organisations within England that either have public involvement in their research or who will provide relevant information.
- NIHR “Getting involved in clinical research” flyer.
- NIHR leaflet “Clinical Trials: what they are and what they are not”.
- NIHR leaflet “Understanding Clinical Trials”.
- NIHR “Research Changed My Life” which collates inspirational experiences from patients, their families and carers.
- NIHR “Research People” — focusing on the experiences of these staff as well as patients carers and their families.