- Reference Number: HEY-901/2017
- Departments: Upper GI
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This leaflet has been produced to give you general information about the Specialist Nurses who will be available to you. Most of your questions should be answered by this leaflet. It is not intended to replace the discussion between you and your Specialist Nurse. If after reading this you have any concerns or require further explanation, please discuss this with a member of the healthcare team caring for you.
What is a Hepatobiliary and Pancreatic Clinical Nurse Specialist?
The hepatobiliary and pancreatic nursing service is offered by a team of nurses who have specialist knowledge and experience in the care and treatment of patients who are having problems with the pancreas, gallbladder, bile duct and liver. This nurse will act as your ‘key worker’ and will provide:
- A named point of contact for you and your family throughout your treatment and afterwards.
- Ongoing advice, information and psychological support regarding your diagnosis, tests and treatment.
- Advice on managing symptoms of your illness.
- A link with other healthcare professionals involved in your care at home and in hospital.
Should you require further advice on the issues contained in this leaflet, please do not hesitate to contact the Hepatobiliary and Pancreatic Clinical Nurse Specialists on (01482) 624349 or (01482) 624350, Monday to Friday 08.30am – 4.30pm (excluding Bank Holidays)
If we are out of the office, please leave a message with your name and contact number and we will aim to call you back within the next 24 hours.
We are happy to be contacted by partners or other family members, provided we have the permission of the patient.
- Pancreatic Cancer UK – Contact www.pancreaticcancer.org.uk
General Advice and Consent
Most of your questions should have been answered by this leaflet, but remember that this is only a starting point for discussion with the healthcare team.
Consent to treatment
Before any doctor, nurse or therapist examines or treats you, they must seek your consent or permission. In order to make a decision, you need to have information from health professionals about the treatment or investigation which is being offered to you. You should always ask them more questions if you do not understand or if you want more information.
The information you receive should be about your condition, the alternatives available to you, and whether it carries risks as well as the benefits. What is important is that your consent is genuine or valid. That means:
- you must be able to give your consent
- you must be given enough information to enable you to make a decision
- you must be acting under your own free will and not under the strong influence of another person
Information about you
We collect and use your information to provide you with care and treatment. As part of your care, information about you will be shared between members of a healthcare team, some of whom you may not meet. Your information may also be used to help train staff, to check the quality of our care, to manage and plan the health service, and to help with research. Wherever possible we use anonymous data.
We may pass on relevant information to other health organisations that provide you with care. All information is treated as strictly confidential and is not given to anyone who does not need it. If you have any concerns please ask your doctor, or the person caring for you.
Under the General Data Protection Regulation and the Data Protection Act 2018 we are responsible for maintaining the confidentiality of any information we hold about you. For further information visit the following page: Confidential Information about You.
If you or your carer needs information about your health and wellbeing and about your care and treatment in a different format, such as large print, braille or audio, due to disability, impairment or sensory loss, please advise a member of staff and this can be arranged.